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Category: Disability
Letting Go: The Group Home Decision
This is our group home story. A decision woven with uncertainty, love, and, ultimately, acceptance. Was the group home decision also a decision of Letting Go? These are frequent questions I receive from families and podcast hosts, and a story worth sharing. How we went from It’s Never Happening to a Leap of Faith. An […]
RV Trip Part Two, Fun Facts and a Surprise Ending
OK, now that we got all the repairs, hospital visits, and other nonsense from my last blog out of the way, I want to let you know about the good parts of the trip, Fun Facts and a surprise to both of us. Rocky Mountain High We drove through the twisty, turny Rocky Mountains to Grand […]
Music Therapy Becomes A Love Language
Music is our daughter Jessica’s love language. She speaks it fluently. Jess is 41 years old, nonverbal, and has a rare genetic deletion (1Q 43-44). She lives in a group home with five other women who have become family. (Article in Today’s My View ) Jacob is Jessica’s music therapist and part of a local […]
Who’s (Really) the Boss? Distinct Roles in Marriage
A year has passed since we took our Winnebago EKKO RV (KanVan) for a spin across the northern plains of America. We are planning another trip, and I am exhausted from all the work. It’s not my work; I basically do nothing.
Distinct Roles in Marriage. Mitch navigates the roads across the country; I navigate the roads of services for Jess. Who’s the Boss?
#raisingJess #family #travel #RV #EKKO #disability #decionmaking
Developmental Disability Awareness Day- Four Key Moments
Join me on a heartfelt journey from curious parent and new professional to author and Keynote speaker. 4 Key moments from DDDAY 35.
Finding the Right Fit, From Inclusion and Beyond: A New Day Program for Jessica
After All That Inclusion in school – Adult Life and A New Day Program for Jessica. We embrace hope as Jessica starts a new chapter.
A Mother’s Journey of Hope and Advocacy
University of Miami Alumni – In a world where compassion can make all the difference, alumna Vickie Rubin is a ray of hope for families raising children w/ special needs.
My View: There are Many Ways to Pay it Forward – If you can’t open article in the Buffalo News – this is a copy:
If you are unable to open article in the Buffalo News – this is a copy:
Inclusion for Jess: After 21
Inclusion for Jess in public school – What was it all for? Jess needed a change- She started a new program last week – And we have Hope #RaisingJess #Hope #DayHab #Inclusion #Disability
My article is in NEWSWEEK!!!
Newsweek Article by Vickie – In September 2022, Vickie was able to drive Jessica’s group home van for the first time.
#RaisingJess #Newsweek #MyTurn #advocate #daughters #wheelchairvan
Connection
Did you ever have a moment when you felt a powerful Connection to something larger than what you can see? A breath of clarity?
Cross-Country Trip Planned for 45 Years from VW Bus to EKKO-But What Happens?
Trip Planned for 45 Years from VW Bus to EKKO RV-But What Happens? In 1977, Mitch bought a VW bus and so starts our story – Read on for more-
The Room Where it Happened
We were finally together in Jessica’s house to share a blessed event. This is the story of what we discovered in The Room Where it Happened.
What the Exit Interview with our Son and Daughter Revealed
So, how did we do? Why not conduct an exit interview when your adult offspring move out of the house. The intention is not for us to do a better job with our future children , but to get a fair assessment (can this really be fair and honest?) of how we did as parents.
What My Mother Knew That Took Me 20 Years to Find Out
My Mom was a big fan of my writing and said, “you should write a book. But I was too busy to write a book. I had a full-time job, three kids, and three dogs at home. Jessica, as documented in many blogs, needed help with every daily life skill.
3 Greatest Moments of Day 160: Jess Chimes in with her Scales
Feeling the Hi! with Jessica Today! ❤️
Why We and Other Families of Children with Disabilities Zoom from Across the World
For many years we did not know our daughter Jessica’s correct diagnosis. We did know that the DNA Jess was missing played a significant role in her development. In 2002, when Jessica was 20 years old, we received results that Jess has a rare chromosome deletion (missing piece). We struggled to find another family in […]
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Finally Seeing Our Daughter Jessica After 54 Days Apart
Today was our first-time seeing Jessica after 54 days–I was not sure how this was going to play out. Jess enjoys facetiming with us, but I was concerned that she would not understand why we were unable to touch her even though we were visibly in front of her. My husband, Mitch, insisted that we […]
