Jessica’s First and Last Hip Surgery: A Lesson in Advocacy
Jessica's risky hip surgery led to severe blood loss. Our parental instincts showed the need to fiercely advocate for our daughter.
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Featured Blog Posts
If you're new here, these are the pieces readers return to most — about Jessica, advocacy, inclusion and the moments that changed how we see things.
A Positive Covid-19 Test Result on Our 41st Wedding Anniversary
A Positive Covid-19 Test Result on Our 41st Wedding Anniversary. As my Dad jokingly said, “even a hypochondriac can be right sometimes!”
Finding the Right Fit, From Inclusion and Beyond: A New Day Program for Jessica
After All That Inclusion in school - Adult Life and A New Day Program for Jessica. We embrace hope as Jessica starts a new chapter.
Inclusion for Jess: After 21
Inclusion for Jess in public school - What was it all for? Jess needed a change- She started a new program last week - And we have Hope…
Finally Seeing Our Daughter Jessica After 54 Days Apart
We have all lost a lot of control of our day-to-day “normal” lives during the Pandemic. Slowly we are trying to regain our footing and although things may…
Brady’s Extraordinary Birth Story, as Told by Nana
Our youngest daughter Carly has a blood clotting disorder called von Willebrand Disease (vW). Giving birth can be extremely dangerous if not monitored correctly. This is the courageous…
Remembering Cantor Susan Wehle and the Passengers of Flight 3407
As Mitch and I drowsily watched the 11:00 news, light snow was falling. Suddenly, we sat up with a jolt! A jet had crashed near Buffalo, NY. #Flight3407
Why Did We say “Goodbye Truck Camper” and What’s Next?
Please do not take this personally, Truck Camper; It is not you; it’s me. Read on to find out why we are saying Goodbye and what's next.
Nursing Jess & A Heart-to-Heart-
Trying to nurse an infant with disabilities, the need-want to naturally nourish my firstborn child. My first step towards advocacy.
Meet KanVan -Rolling with the Rubin’s
The day we received our truck camper, I wrote a blog called Camper Envy and Size Matters. We were owners for less than one day, and already I was lusting…
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