Join me on a heartfelt journey from curious parent and new professional to author and Keynote speaker. 4 Key moments from DDDAY 35.
Tag: Disability
Finding the Right Fit, From Inclusion and Beyond: A New Day Program for Jessica
After All That Inclusion in school – Adult Life and A New Day Program for Jessica. We embrace hope as Jessica starts a new chapter.
A Mother’s Journey of Hope and Advocacy
University of Miami Alumni – In a world where compassion can make all the difference, alumna Vickie Rubin is a ray of hope for families raising children w/ special needs.
My View: There are Many Ways to Pay it Forward – If you can’t open article in the Buffalo News – this is a copy:
If you are unable to open article in the Buffalo News – this is a copy:
Inclusion for Jess: After 21
Inclusion for Jess in public school – What was it all for? Jess needed a change- She started a new program last week – And we have Hope #RaisingJess #Hope #DayHab #Inclusion #Disability
My article is in NEWSWEEK!!!
Newsweek Article by Vickie – In September 2022, Vickie was able to drive Jessica’s group home van for the first time.
#RaisingJess #Newsweek #MyTurn #advocate #daughters #wheelchairvan
Connection
Did you ever have a moment when you felt a powerful Connection to something larger than what you can see? A breath of clarity?
Cross-Country Trip Planned for 45 Years from VW Bus to EKKO-But What Happens?
Trip Planned for 45 Years from VW Bus to EKKO RV-But What Happens? In 1977, Mitch bought a VW bus and so starts our story – Read on for more-
How Would you Cope if Told Your Child has Severe Multiple Disabilities?
How Would you Cope if Told Your Child has Severe Multiple Disabilities? New podcast. An upbeat conversation about a family changed forever.
The Room Where it Happened
We were finally together in Jessica’s house to share a blessed event. This is the story of what we discovered in The Room Where it Happened.
Did Motherhood Really All Start with Chickenpox?
As the months passed, the doctor continued to assure us that Jess was fine. I continued to question all her delays. Welcome to Motherhood.
Nursing Jess & A Heart-to-Heart-
Trying to nurse an infant with disabilities, the need-want to naturally nourish my firstborn child. My first step towards advocacy.
From Autism to Rare Disease: One Family’s Journey to an Unexpected Diagnosis
He had just turned two when he was diagnosed with autism. But then the unexpected discovery led to the full story.
In My Shoes
I hate to fly. But Sometimes you must down the alcohol- I need to pregame my drinks- and enter the aircraft right foot first. I was headed to the In My Shoes event!
Raising Jess: A Story of Hope
4 years in the making, Raising Jess a Story of Hope is finally available on Amazon, Barnes and Noble . Thank you to everyone for all of the love, support, and encouragement. Especially my (late) mother, who told/nagged me to write a book
Dear Noa, A Nana Lesson about Special Needs and Love
Dear Noa, Aunty Jess is different from others you have met. We hope you will see the Jess we cherish and find all that you and she have in common. Read on to learn about the beautiful aunt/niece bond.
What the Exit Interview with our Son and Daughter Revealed
So, how did we do? Why not conduct an exit interview when your adult offspring move out of the house. The intention is not for us to do a better job with our future children , but to get a fair assessment (can this really be fair and honest?) of how we did as parents.
What My Mother Knew That Took Me 20 Years to Find Out
My Mom was a big fan of my writing and said, “you should write a book. But I was too busy to write a book. I had a full-time job, three kids, and three dogs at home. Jessica, as documented in many blogs, needed help with every daily life skill.
Feeling the Hi! with Jessica Today! ❤️
Finally Seeing Our Daughter Jessica After 54 Days Apart
Today was our first-time seeing Jessica after 54 days–I was not sure how this was going to play out. Jess enjoys facetiming with us, but I was concerned that she would not understand why we were unable to touch her even though we were visibly in front of her. My husband, Mitch, insisted that we […]
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FACE-TIMING with JESSICA a Magical Moment
Coronavirus has changed all our lives in so many ways. One of the saddest changes is the absence of seeing and hugging family. But through sadness, in our situation, we found some illumination and a bright light that brought a smile to my husband Mitch and myself.
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Connecting with Others: Our Daughter Jessica Started My Path to Writing and Receiving
Our eldest daughter, Jessica, has a rare chromosome abnormality, uses a wheelchair, and needs total assistance with all daily life skills. Jess was born in 1982 and within the year we knew that there were many developmental issues. Jess just turned 38 years old and is a joy to all who know her and love […]
