A Mother’s Words for Jessica I am not defined by my rare chromosome deletion —but some dismiss me immediately I am not defined by my wheelchair—although many people can’t see past that I am not defined by the assistance I need to get through each day — yet, many cannot overlook the daily moment-to-moment care […]
Bravery isn’t always loud—it’s Mitch’s calm, my panic-to-strength, and Jessica facing the unimaginable every time
When we moved our daughter Jess into a group home at age 25, it felt like we were giving up. 💔
But as Colin Farrell shared about his son James—what’s the alternative?
If something happened to us tomorrow, where would she go? Who would ensure her safety, dignity, and quality of life?
Colin’s words resonated deeply with me. Like him, we realized that planning —while we were healthy—was an act of love.
Today, Jess has:
✨ A home in her community
✨ Housemates who feel like sisters
✨ A life full of connection, friendship, and independence
And we are still at the center of her world—just in a different way.
To other parents navigating this decision: you’re not giving up. You’re building the future your child deserves.
After 2 years of waiting, a confusing policy, a last-minute call, and one amazing doctor, Jessica finally made it to the OR— A Dental Story
(This Author Had A TYPO (Thanks for nothing, the Autocorrect! 😂) and needed to fix the title – sorry if you receive it twice! This is a first – Never Have I Ever had somebody come up to me and ask this question.
A rare genetic diagnosis gave us a name, a global community—and a spot in the not-so-little UNIQUE Red Book.
The world isn’t built with every child in mind. Embrace creativity and flexibility to unlock doors where the standard system falls short for your child. Read for Creative learning ideas!
Happy Birthday, Jess – Chapter 1 – Raising Jess: A Story of Hope- April 11, 1982, The beginning of our story. As the months passed, the doctor continued to assure us that Jess was fine. I continued to question all her delays. Welcome to Motherhood.
Blogger’s block: the struggle is real. Symptoms include excessive deleting, obsessive view-count checking, and questioning life choices. Write Delete Repeat!” #writersBlock #BloggersBlock #Communication #RareDisease #Creativity #RaisingJess
Strategies to guide parents of children with special needs integrate self-care into your routine, ensuring you remain balanced and energized.
As seen in Buffalo News, Jessica’s hygienist writes a new chapter each visit— “How to dodge bites, flails while using sharp tools!” 🦷
Okay, let me explain Vick Squared. First, it’s Vickie (me) and Vicki (Atkinson, who is also a Ph.D, so she has even more letters! One of the hosts). Wynne is the Heart of the Matter ( HoTM ) co-host and an enthusiast of endurance sports. They both host Heart of the Matter, they focus on the importance of intergenerational wellness and healing. They believe writing and storytelling can build resilience for the future by exploring what matters most in life: connection, laughter, empathy and authenticity.
Bones, Scopes, and Hopes. A Thankful, heartwarming story about our gratitude to Jessica’s healthcare Superheroes.
Whether facing challenges or looking for inspiration, “Raising Jess” will show that thriving is possible, no matter what life throws your way
(Article written in 2008) This article was posted in the Buffalo News in 2008 – I am re-posting it today because Former President Donald Trump called Vice President Kamala Harris “retarded” while attempting to convince top Republican donors to pour more money into his campaign, The New York Times reported Saturday. In most homes a […]
Volunteering as a NICU Baby Rocker, I comforted fragile infants in a Level 4 NICU, providing essential touch and care. Touch is crucial for newborns, especially for those too weak to leave the incubator. Despite fears and mishaps, the experience was rewarding. My daughter’s own challenges inspired me to give back, and I am grateful for the privilege.
Facing life’s curveballs is easier with friends. These women embraced Jessica into their circle, turning it into her very own Friend Network! #RaisingJess #Friends #Disability #Inspiring #Rare Disease #Family
#RaisingJess #Friends #Disability #Inspiring #Rare Disease #Family
Parenting a child with disabilities impacts personal & professional life. Achieving balance requires thoughtful strategies and adjustments.
Book promo isn’t easy, but WOW! moments keep me going. When I receive your feedback about Raising Jess, It Reminds me why I do what I do!
🎙️ New Episode Alert! 🎙️ “The Gift of a Late Diagnosis” and a heartwarming reading of “The Gift of Grandparents” at minute 21:09 – Plus the journey and joy of writing your own story. #Podcast #LateDiagnosis #Grandparents #MemoirWriting #Storytelling #LetsTalkMemoir #RaisingJess #RonitPlank #Family #Disability #SpecialNeeds #Humor #RareDisease #Inspirational
Thank you for the 2-min. interview, PBS – Retirement does not mean retiring from life. It’s an opportunity to rediscover forgotten interests.
“Ah, Friday – the day when I question my entire week’s worth of news intake, hoping it’s enough to secure victory in the family NYT quiz showdown.
Jessica’s risky hip surgery led to severe blood loss. Our parental instincts showed the need to fiercely advocate for our daughter.
I am Not a Whippet! I am an IGGY. But the worst inDOGnation, is my dog stroller. Oh, paw-lease! How did I succumb to this?
My beloved Mom, DiaNNe (with two N’s, or you will hear it!), battled Alzheimer’s. This year is my mom’s fourth Yahrzeit, the anniversary of her death. The date is based on the Hebrew calendar, a lunar datebook with 29 monthly days alternating with 30 days. It’s too confusing for me to calculate, so I rely […]